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Well, that's just great. Stuff like this is why I don't understand peoples' desperation for things to "go back to normal." For lots of people who've had COVID, normal ain't ever coming back anyway.
For those of us with any long-covid issues, also know as covid long haulers. (14 Viewers)
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nolaswede
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I feel like I’m pretty much back to normal, after 12 months, but coffee and cat food smells about the same. Sort of a burnt smell.
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It's weird how specific some of these smell issues are
Everything smells normal except coffee? I've read similar situations. everything is good expect a handful of smells
FLEA
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I had the ORIGINAL COVID 2 years ago Christmas....not too bad but lost sense of smell and taste and ran a low grade fever for 3 or 4 days on and off. 3 or 4 days after I was cleared I woke up that morning and literally every joint in my body ached/hurt, so much so that I could not pick up a cup of coffee and it hurt to even walk. If it could bend it hurt. I had a friend drive me to the doc because I really thought I had contracted COVID again. Test came back negative for both COVID and flu. The nurse told me it was probably my body producing antibodies. The pain lasted 24 hours and when I woke up the next morning there was no pain what so ever. Very crazy, but with my cardic history I then went and got checked out to make sure I was not clotting up....I wasn't. All very strange!
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…..“My life has changed profoundly,” he wrote in a recent blog. “I now feel fatigued and exhausted almost all of the time. I have no energy, like someone has removed my batteries. On the worst days of the last few months, I’ve been sitting or lying down worrying about breathing. Breathing is life itself. When you’re struggling to breathe, everything else falls into perspective.”
It’s a far cry from the fit, energetic man Bladon was not so long ago. Long Covid has affected him in all sorts of unexpected ways. When the Guardian interviewed him last week, he warned he sometimes loses track mid-sentence and forgets words. It’s something that’s happened since he contracted the virus.
“It’s like being in somebody else’s body,” he says. “I wake up in the morning and whereas I would normally jump up at once and go running before work, now I don’t sleep very well. When I wake up I feel exhausted. It’s like having no energy, no fuel, no batteries. There’s nothing there.
“I get up, I feel lousy. As a matter of pride I think oh, I’ll hoover the front room, I’ll put the breakfast things away. But if I do anything I feel shattered. I’ve gone from being non-stop to having to think about every step. When you get in this situation you realise how much work means to you and how big a part of your life it is.”……
www.theguardian.com
It’s a far cry from the fit, energetic man Bladon was not so long ago. Long Covid has affected him in all sorts of unexpected ways. When the Guardian interviewed him last week, he warned he sometimes loses track mid-sentence and forgets words. It’s something that’s happened since he contracted the virus.
“It’s like being in somebody else’s body,” he says. “I wake up in the morning and whereas I would normally jump up at once and go running before work, now I don’t sleep very well. When I wake up I feel exhausted. It’s like having no energy, no fuel, no batteries. There’s nothing there.
“I get up, I feel lousy. As a matter of pride I think oh, I’ll hoover the front room, I’ll put the breakfast things away. But if I do anything I feel shattered. I’ve gone from being non-stop to having to think about every step. When you get in this situation you realise how much work means to you and how big a part of your life it is.”……
‘I last went to school in December’: a headteacher’s battle with long Covid
Steve Bladon led his Lincolnshire school tirelessly through the pandemic and thought the worst was over – then fatigue set in
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mine is a 1/10th of that and i feel beat, I could only imagine feeling like that.…..“My life has changed profoundly,” he wrote in a recent blog. “I now feel fatigued and exhausted almost all of the time. I have no energy, like someone has removed my batteries. On the worst days of the last few months, I’ve been sitting or lying down worrying about breathing. Breathing is life itself. When you’re struggling to breathe, everything else falls into perspective.”
It’s a far cry from the fit, energetic man Bladon was not so long ago. Long Covid has affected him in all sorts of unexpected ways. When the Guardian interviewed him last week, he warned he sometimes loses track mid-sentence and forgets words. It’s something that’s happened since he contracted the virus.
“It’s like being in somebody else’s body,” he says. “I wake up in the morning and whereas I would normally jump up at once and go running before work, now I don’t sleep very well. When I wake up I feel exhausted. It’s like having no energy, no fuel, no batteries. There’s nothing there.
“I get up, I feel lousy. As a matter of pride I think oh, I’ll hoover the front room, I’ll put the breakfast things away. But if I do anything I feel shattered. I’ve gone from being non-stop to having to think about every step. When you get in this situation you realise how much work means to you and how big a part of your life it is.”……
‘I last went to school in December’: a headteacher’s battle with long Covid
Steve Bladon led his Lincolnshire school tirelessly through the pandemic and thought the worst was over – then fatigue set in
Some people are like, well, you are just getting older. I agree, but it was like someone flipped a light switch after I had Covid. My Honey Do list has gotten really backed up, because on the weekends where i am free, all i want to do is rest.
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The condition known as long covid continues to frustrate its sufferers, baffle scientists and alarm people who are concerned about being infected by the coronavirus.
The term, a widely used catchall phrase for persistent symptoms that can range from mild to debilitating and last for weeks, months or longer, is technically known as Post-Acute Sequelae of SARS-CoV-2 infection, or PASC.
But scientists say much remains unknown about long covid, which is also referred to colloquially as “long-haul covid,” “long-term covid,” “post-covid conditions” and “post-covid syndrome,” among other names.
“This is a condition that we don’t even have an agreed-upon name for yet, and we don’t have any understanding really of what’s going on down at a chemical level,” said Greg Vanichkachorn, medical director of Mayo Clinic’s COVID-19 Activity Rehabilitation Program.
“So, until we have that kind of understanding, it’s really important that we not make quick decisions about what long covid can or can’t be.”.
The National Institutes of Health has launched a research initiative to study the potential consequences of being infected with the coronavirus, including long covid, with the goal of identifying causes as well as means of prevention and treatment.
It is building a nationwide study population to conduct that research. In the meantime, experts said, long covid shouldn’t be dismissed or taken lightly. “This is real, definable, and causes significant patient suffering,” said Bruce Levy, chief of the division of pulmonary and critical care medicine at Brigham and Women’s Hospital in Boston.
“The majority of people who got acutely infected felt totally normal before they had their infection, and now they don’t feel normal. That’s jarring.”……
The term, a widely used catchall phrase for persistent symptoms that can range from mild to debilitating and last for weeks, months or longer, is technically known as Post-Acute Sequelae of SARS-CoV-2 infection, or PASC.
But scientists say much remains unknown about long covid, which is also referred to colloquially as “long-haul covid,” “long-term covid,” “post-covid conditions” and “post-covid syndrome,” among other names.
“This is a condition that we don’t even have an agreed-upon name for yet, and we don’t have any understanding really of what’s going on down at a chemical level,” said Greg Vanichkachorn, medical director of Mayo Clinic’s COVID-19 Activity Rehabilitation Program.
“So, until we have that kind of understanding, it’s really important that we not make quick decisions about what long covid can or can’t be.”.
The National Institutes of Health has launched a research initiative to study the potential consequences of being infected with the coronavirus, including long covid, with the goal of identifying causes as well as means of prevention and treatment.
It is building a nationwide study population to conduct that research. In the meantime, experts said, long covid shouldn’t be dismissed or taken lightly. “This is real, definable, and causes significant patient suffering,” said Bruce Levy, chief of the division of pulmonary and critical care medicine at Brigham and Women’s Hospital in Boston.
“The majority of people who got acutely infected felt totally normal before they had their infection, and now they don’t feel normal. That’s jarring.”……
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Thought this belonged here and not on MAP
================
Sen. Tim Kaine got covid-19 in the spring of 2020, and nearly two years later he still has mild symptoms. “I tell people it feels like all my nerves have had like five cups of coffee,” Kaine said Wednesday of his “24/7” tingling sensation, just after introducing legislation intended to expand understanding of long covid.
The Virginia Democrat is one of the thousands or even millions of Americans who could have long covid, the little-understood phenomenon in which symptoms linger for weeks or months after a coronavirus infection.
There is no agreed-upon understanding of its root causes, or even its official name, making treatment of the long-term symptoms difficult — including for Kaine. That’s why on Wednesday, Kaine joined Sens. Edward J. Markey (D-Mass.) and Tammy Duckworth (D-Ill.) in introducing a bill to fund research into the long-term effects of the disease and expand treatment resources for people experiencing them……..
================
Sen. Tim Kaine got covid-19 in the spring of 2020, and nearly two years later he still has mild symptoms. “I tell people it feels like all my nerves have had like five cups of coffee,” Kaine said Wednesday of his “24/7” tingling sensation, just after introducing legislation intended to expand understanding of long covid.
The Virginia Democrat is one of the thousands or even millions of Americans who could have long covid, the little-understood phenomenon in which symptoms linger for weeks or months after a coronavirus infection.
There is no agreed-upon understanding of its root causes, or even its official name, making treatment of the long-term symptoms difficult — including for Kaine. That’s why on Wednesday, Kaine joined Sens. Edward J. Markey (D-Mass.) and Tammy Duckworth (D-Ill.) in introducing a bill to fund research into the long-term effects of the disease and expand treatment resources for people experiencing them……..
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Deepa Singh, 30, of Louisville, has been seriously ill for two years, racked with extreme fatigue, racing heartbeat and memory problems from long covid that she says prevent her from working.
Adding to her distress, she says, has been a grueling — and so far unsuccessful — battle for disability payments.
Singh, who worked as a project manager for a Fortune 100 company, is among a cohort of long covid patients who have been denied disability benefits, either by private insurance companies, which operate benefit plans offered by employers, or by the Social Security Administration, which manages government disability benefits.
Tasked with sorting legitimate health claims from fraudulent or marginal ones, these gatekeepers now face a novel challenge as the coronavirus pandemic drags on: a flood of claims citing a post-infection syndrome that is poorly understood by the medical community and difficult to measure.
Patients cite a litany of symptoms that defy verification through basic medical tests. They become exhausted at the merest exertion. They can’t remember simple words. Their hearts feel like they are fluttering. Yet neurological exams, EKGs and chest X-rays come back clean.
Doctors said in interviews they are treating long covid patients who are clearly too sick to work but who have difficulty meeting the evidence threshold insurers demand: objective medical test results showing an inability to perform work…….
Adding to her distress, she says, has been a grueling — and so far unsuccessful — battle for disability payments.
Singh, who worked as a project manager for a Fortune 100 company, is among a cohort of long covid patients who have been denied disability benefits, either by private insurance companies, which operate benefit plans offered by employers, or by the Social Security Administration, which manages government disability benefits.
Tasked with sorting legitimate health claims from fraudulent or marginal ones, these gatekeepers now face a novel challenge as the coronavirus pandemic drags on: a flood of claims citing a post-infection syndrome that is poorly understood by the medical community and difficult to measure.
Patients cite a litany of symptoms that defy verification through basic medical tests. They become exhausted at the merest exertion. They can’t remember simple words. Their hearts feel like they are fluttering. Yet neurological exams, EKGs and chest X-rays come back clean.
Doctors said in interviews they are treating long covid patients who are clearly too sick to work but who have difficulty meeting the evidence threshold insurers demand: objective medical test results showing an inability to perform work…….
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Good article
============
Hi. My name is Charlie, and long Covid has destroyed my life.
Before my “mild infection”, I was a healthy, fit 30-year-old, biking 10 miles a day with no prior health issues, the type of person the CDC says should bounce back after two weeks.
Well, it’s been two years and I’ve yet to bounce back. I can’t work or leave the house, and I rely on my partner as a full-time caretaker. I still can’t breathe right. It is a living nightmare.
Writing this piece would have taken me an evening before I was sick, but now this level of cognitive exertion takes an entire week to complete.
There are millions suffering through this every day, stuck in a twilight zone of never-ending debilitating symptoms for months, and now years, after infection.
And with a reported 10-30% of infectionsleading to this condition, we are witnessing the greatest mass disabling event in human history – the scale of which demands the same “Operation Warp Speed” type of urgency that was given to acute Covid and the development of vaccines.
This is still a new disease, and it will take time to understand everything. However, research is quickly unraveling the disease process, and it is no longer a “complete mystery”. So while we can only push science so fast, here are my four questions about the treatment, support and prevention of long Covid.
Current clinical diagnostics have proven insufficient for the diagnosis and treatment of long Covid (along with other longstanding post viral illnesses such as ME/CFS).
However, the latest research is developing dozens of new diagnostic methods that have identified explicit biological abnormalities in the long Covid disease process……
While the likelihood of someone developing the condition after infection has ranged from 5% or 50% (a recent meta-analysispins it to 20-30%, and 10% if vaccinated), the most conservative estimate still amounts to one in 20 people. A “medically rare event” is one in 1,000……
www.theguardian.com
============
Hi. My name is Charlie, and long Covid has destroyed my life.
Before my “mild infection”, I was a healthy, fit 30-year-old, biking 10 miles a day with no prior health issues, the type of person the CDC says should bounce back after two weeks.
Well, it’s been two years and I’ve yet to bounce back. I can’t work or leave the house, and I rely on my partner as a full-time caretaker. I still can’t breathe right. It is a living nightmare.
Writing this piece would have taken me an evening before I was sick, but now this level of cognitive exertion takes an entire week to complete.
There are millions suffering through this every day, stuck in a twilight zone of never-ending debilitating symptoms for months, and now years, after infection.
And with a reported 10-30% of infectionsleading to this condition, we are witnessing the greatest mass disabling event in human history – the scale of which demands the same “Operation Warp Speed” type of urgency that was given to acute Covid and the development of vaccines.
This is still a new disease, and it will take time to understand everything. However, research is quickly unraveling the disease process, and it is no longer a “complete mystery”. So while we can only push science so fast, here are my four questions about the treatment, support and prevention of long Covid.
1. Why don’t we have diagnostics yet for microclots?
“Great news – all your labs look normal” is the dreaded phrase long Covid patients hear repeatedly from their medical team, and often leads to a minimization and dismissal of their symptoms.Current clinical diagnostics have proven insufficient for the diagnosis and treatment of long Covid (along with other longstanding post viral illnesses such as ME/CFS).
However, the latest research is developing dozens of new diagnostic methods that have identified explicit biological abnormalities in the long Covid disease process……
2. Why is there still no public health warning?
We’ve known for well over a year how prevalent and severe long Covid is, yet the public remains largely uninformed around its risk.While the likelihood of someone developing the condition after infection has ranged from 5% or 50% (a recent meta-analysispins it to 20-30%, and 10% if vaccinated), the most conservative estimate still amounts to one in 20 people. A “medically rare event” is one in 1,000……
We need answers to these four long Covid questions | Charlie McCone
I was a fit 30-year-old, and long Covid has destroyed my life. It’s frustrating how little action there has been
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I had originally thought that long covid came after a serious bout of covid
Looks like that's not the case and this is what I've been worried about.
Getting Covid with mild or no symptoms but end up dealing with serious long covid issues
==============================================================
Linda Timmer wanted to practice what she preached.
While working at a domestic violence nonprofit in Arizona during the height of the Covid-19 summer wave in 2020, Timmer wrote pandemic policies for her workplace, encouraging her colleagues to wear masks and, if they had been exposed to the coronavirus or had symptoms, get tested.
Timmer herself was not aware of being exposed or having any Covid-19 symptoms, such as cough or fever, but she started experiencing some unusual moments when she felt fatigued or forgetful, along with several episodes of confusion.
"They weren't really putting that in the list of symptoms to go get tested for," said Timmer, now 64.
That August, "the brain confusion was so unusual for me that I just thought, 'I'm telling everyone to wear masks and follow these policies; I better go get tested, too,' " Timmer said. She decided to get tested for Covid-19 at a drive-up site.
"I never expected to be positive," she said, adding that she was "devastated," because she did not want to miss work.
Not only did she test positive, but that was just the beginning of a long battle.
Emerging research suggests that a small portion of people who now live with long Covid may have showed no Covid-19 symptoms at all when they were initially infected -- or their symptoms were mild or unusual, similar to what Timmer had.
Within about two weeks, Timmer had recovered from acute Covid-19 infection. But as she returned to work, she still felt unusual, with problems like overheating, confusion, loss of taste, sound hallucinations and breathlessness.
"I realized the more I tried to walk or return to normal, my symptoms worsened severely, and I would end up in bed with pain and fatigue for weeks," Timmer said.
"This was my most terrifying time in my life," she said.
Timmer retired early -- before her illness, she had not made plans to retire -- and she moved to New Mexico in November 2020 to live with her sister while she sought treatment for her ongoing symptoms.
In February 2021, she moved to Michigan to live with her son. Now, 20 months later, Timmer still has "debilitating" symptoms from long Covid.
Timmer is not alone.
One preprint paper, posted last year to the server MedRxiv, featured an analysis of more than 1,400 medical records in California for people who tested positive for Covid-19. It found that roughly 32% of those reporting long-haul symptoms more than 60 days following a Covid-19 diagnosis had no symptoms at the time of their initial Covid-19 test.
"I've seen similar stuff in clinic, as well. Patients coming in with either no symptoms or some very mild symptoms like sore throat, cough, maybe some sneezing, and a few weeks later, debilitating headaches, inability to get up in the morning or just unrelenting fatigue and weakness. And before we knew that long Covid was really a phenomenon, we didn't know what to do," said Dr. Ali Khan, who specializes in internal medicine at Oak Street Health in Chicago.
In some people, "we are seeing the coronavirus itself interact with almost every single part of the human body, which is just so atypical for most diseases, particularly most viruses. So we see that in some people -- even in people whose initial infections were silent -- it can work in the bloodstream to cause you to be more likely to get a blood clot," he said.
"For other people, that coronavirus is attacking the nerves, and it's causing nerve pain; it's causing headaches; it's causing longstanding sciatica that many of my patients are dealing with."
The US Centers for Disease Control and Prevention describes long Covid, or "post-Covid" conditions, as a wide range of new, returning or ongoing health problems four or more weeks after acute Covid-19 infection.
"Even people who did not have COVID-19 symptoms in the days or weeks after they were infected can have post-COVID conditions," according to the CDC. "These conditions can present as different types and combinations of health problems for different lengths of time."
The consensus in the medical field is that Covid-19 is an "acute illness" and long Covid is a "subacute chronic illness," said Dr. Adupa Rao, a pulmonologist with the University of Southern California's Keck Medicine who sees long Covid patients through Keck Medicine's COVID Recovery Clinic...........
"Anywhere from 10% to 30% of patients can experience symptoms of Covid after apparently recovering, even if they weren't sick in the first place," he said. "And it's a wide range of new, returning or ongoing health problems that we typically have put into three different categories."
The first category, Harmon said, includes people who have direct cell damage that was caused by the coronavirus during the initial infection and takes a long time to recover from. Examples include acute kidney damage, acute lung damage, a big infection of pneumonia in the lung or a blood clot in the brain.
The second category describes people hospitalized with Covid-19 who may have long-term complications from being bed-bound for weeks, such as neurological damage, lung damage or muscle weakness.
Experts are "probably more concerned with" the third category, Harmon said. It includes anyone who recovered from an initial Covid-19 infection that wasn't severe but then had symptoms.
"And they're thinking, 'My goodness, is this a recurrence of the Covid infection? Is it delayed? Is it a new something that's masquerading as Covid? Or is it Covid masquerading as something more common, such as pneumonia?' " Harmon said...........
Looks like that's not the case and this is what I've been worried about.
Getting Covid with mild or no symptoms but end up dealing with serious long covid issues
==============================================================
Linda Timmer wanted to practice what she preached.
While working at a domestic violence nonprofit in Arizona during the height of the Covid-19 summer wave in 2020, Timmer wrote pandemic policies for her workplace, encouraging her colleagues to wear masks and, if they had been exposed to the coronavirus or had symptoms, get tested.
Timmer herself was not aware of being exposed or having any Covid-19 symptoms, such as cough or fever, but she started experiencing some unusual moments when she felt fatigued or forgetful, along with several episodes of confusion.
"They weren't really putting that in the list of symptoms to go get tested for," said Timmer, now 64.
That August, "the brain confusion was so unusual for me that I just thought, 'I'm telling everyone to wear masks and follow these policies; I better go get tested, too,' " Timmer said. She decided to get tested for Covid-19 at a drive-up site.
"I never expected to be positive," she said, adding that she was "devastated," because she did not want to miss work.
Not only did she test positive, but that was just the beginning of a long battle.
Emerging research suggests that a small portion of people who now live with long Covid may have showed no Covid-19 symptoms at all when they were initially infected -- or their symptoms were mild or unusual, similar to what Timmer had.
Within about two weeks, Timmer had recovered from acute Covid-19 infection. But as she returned to work, she still felt unusual, with problems like overheating, confusion, loss of taste, sound hallucinations and breathlessness.
"I realized the more I tried to walk or return to normal, my symptoms worsened severely, and I would end up in bed with pain and fatigue for weeks," Timmer said.
"This was my most terrifying time in my life," she said.
Timmer retired early -- before her illness, she had not made plans to retire -- and she moved to New Mexico in November 2020 to live with her sister while she sought treatment for her ongoing symptoms.
In February 2021, she moved to Michigan to live with her son. Now, 20 months later, Timmer still has "debilitating" symptoms from long Covid.
Timmer is not alone.
One preprint paper, posted last year to the server MedRxiv, featured an analysis of more than 1,400 medical records in California for people who tested positive for Covid-19. It found that roughly 32% of those reporting long-haul symptoms more than 60 days following a Covid-19 diagnosis had no symptoms at the time of their initial Covid-19 test.
"I've seen similar stuff in clinic, as well. Patients coming in with either no symptoms or some very mild symptoms like sore throat, cough, maybe some sneezing, and a few weeks later, debilitating headaches, inability to get up in the morning or just unrelenting fatigue and weakness. And before we knew that long Covid was really a phenomenon, we didn't know what to do," said Dr. Ali Khan, who specializes in internal medicine at Oak Street Health in Chicago.
In some people, "we are seeing the coronavirus itself interact with almost every single part of the human body, which is just so atypical for most diseases, particularly most viruses. So we see that in some people -- even in people whose initial infections were silent -- it can work in the bloodstream to cause you to be more likely to get a blood clot," he said.
"For other people, that coronavirus is attacking the nerves, and it's causing nerve pain; it's causing headaches; it's causing longstanding sciatica that many of my patients are dealing with."
The US Centers for Disease Control and Prevention describes long Covid, or "post-Covid" conditions, as a wide range of new, returning or ongoing health problems four or more weeks after acute Covid-19 infection.
"Even people who did not have COVID-19 symptoms in the days or weeks after they were infected can have post-COVID conditions," according to the CDC. "These conditions can present as different types and combinations of health problems for different lengths of time."
The consensus in the medical field is that Covid-19 is an "acute illness" and long Covid is a "subacute chronic illness," said Dr. Adupa Rao, a pulmonologist with the University of Southern California's Keck Medicine who sees long Covid patients through Keck Medicine's COVID Recovery Clinic...........
"Anywhere from 10% to 30% of patients can experience symptoms of Covid after apparently recovering, even if they weren't sick in the first place," he said. "And it's a wide range of new, returning or ongoing health problems that we typically have put into three different categories."
The first category, Harmon said, includes people who have direct cell damage that was caused by the coronavirus during the initial infection and takes a long time to recover from. Examples include acute kidney damage, acute lung damage, a big infection of pneumonia in the lung or a blood clot in the brain.
The second category describes people hospitalized with Covid-19 who may have long-term complications from being bed-bound for weeks, such as neurological damage, lung damage or muscle weakness.
Experts are "probably more concerned with" the third category, Harmon said. It includes anyone who recovered from an initial Covid-19 infection that wasn't severe but then had symptoms.
"And they're thinking, 'My goodness, is this a recurrence of the Covid infection? Is it delayed? Is it a new something that's masquerading as Covid? Or is it Covid masquerading as something more common, such as pneumonia?' " Harmon said...........
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Man, that's tough. I think I'd really miss smell. I have a severe hearing loss. I think I'd rather lose hearing than smell. Hope it gets better eventually.
It's there, but something needs to be somewhat strong to get a good whiff of it. Like, walking outside is eh.Man, that's tough. I think I'd really miss smell. I have a severe hearing loss. I think I'd rather lose hearing than smell. Hope it gets better eventually.
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Same with my wife and some things smell bad that she used to like.
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