What a ride it has been! [TITLE CHANGED] (1 Viewer)

Bleu Raeder

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Because some of us are very acquainted though this forum and as alluded to in https://saintsreport.com/forums/f3/i-have-avoided-posting-long-i-can-355540/#.WAfjV_krL0M I have received some news recently which affects life in a most profound way. I have been hesitant to share this news for a number of reasons, but some of you I know here would like to know. We've known each other a long time (almost 20 years????) through this outlet and sometimes in real life and I am as close with some of you as I would be with any dear friend even if we've never met in person. Some of you who are connected to me in other social media may have figured it out.

It seems I am dragging my feet here, but all of that needed to be said.

On Friday I was diagnosed with Stage IV Metastatic Lung Cancer in my left lung.

Just 3 short weeks ago during my wellness exam we discussed getting my heart checked just because heart disease in my family had finally reared its ugly head. My calcium score was good but they saw a shadow on the CT which they wanted to check into. "Could be nothing.", they said. They schedule a PET scan and I honestly thought it looked like an excessive jump to go from these results to such an expensive test (https://saintsreport.com/forums/f3/grrrr-cost-health-care-359622/#.WAjM__krL0M). A second opinion or two confirmed this was the test needed. The PET lead to a biopsy in one of my ribs (where the metastasis is). The biopsy lead to the diagnosis.

I have a referral to MD Anderson and will be there in a couple of weeks.

Here is the thing: I have no symptoms other than the discomfort left over from the biopsy. No pain. No coughing. I run 3 or 4 days a week and have no problems with my breathing other than sinus junk. I still play my trombone. If we hadn't done the calcium scoring no alarm would have been raised until I became symptomatic and who knows how long that would have taken.

I am also hopeful and know I can beat this. I am more than determined to beat this. There is a lot of life yet to be lived and I am confident I will be here to live it.
 
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Dago

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I hope this will really be the final update, at least on this subject:

I have completed treatment and will be ringing the bell this week: https://www.houstonchronicle.com/ne...-bell-rings-with-relief-and-hope-11135577.php The scans are clear, no more biopsies to be done.

I am cancer free.

Now, there are some things that have to be done and I will forever be under the watchful eyes of a cancer specialist or two for the remainder of my, what is now hoped to be long, life. There will be scans and tests and occasional visits. There may be "maintenance" therapies. I plan to take each of them in stride.

I want to thank each and every one of you who has offered good thoughts, prayer, encouragement, support, a shoulder to cry on, a joke to laugh at, meals, treats and smiles. I have said it before and I will continue to say it - waking up each morning knowing that someone is praying for you and loving you is the greatest gift any of us can receive. I am beyond blessed.
Congratz man. First good news this year since LSU won it all
 

Dan in Lafayette

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Great to hear, Jay. Very glad that the news remains positive. You need to make a trip back down south once the world runs out of Corona.
 
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Bleu Raeder

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So weird that it feels like ancient history now. This virus has jacked up my sense of time.
There are so many things right now which are so surreal. Every time I have to go someplace and see lines waiting to get in or a grocery store with very few people inside at the height of the day or a hospital setting where there is no one in the hallways it jacks with my sense of reality. Given our current layout I spend about 85% of my day in the same room, so that is weird too.

It is almost sad to say that the only normal cadence I have is the regularly-scheduled doctor's visits.
 

saintmdterps

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This thread being bumped made me nervous.
Especially now that the OP isn't highlighted.

Great to hear, Jay!! Sending good thoughts and well-wishes your way for more good news from your scan. I wish I could do more. I'm sure you have therapists at your disposal, but if you ever need the advice of an OT, please reach out :)
 
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Bleu Raeder

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I had another scan yesterday. There is a nodule (about the size of a pencil eraser) of some sort which has been on the scans for a while, but in yesterday's scan, it was slightly larger than it had been before. Given my recent battle with the gall bladder and a recurrence of skin cancer, it could be larger because of a number of things but we're going to have it biopsied just to make sure. I am sure it is nothing to worry about, and we'll handle it no matter what the results are. The biopsy is scheduled about a week and a half from now and we should know the results a few days after that.

Please send out positive vibes and prayers.

I had a rather odd (or maybe not) thought this morning based on all of those MBC (metastatic breast cancer) commercials that we see all of the time. It seems that in some cases we're "living with cancer" by "managing" it such that it doesn't become life-threatening as kind of a middle step between having cancer and curing cancer. The latest immunotherapy drugs (Opdivo, Keytruda) seem to be in that class of drugs for some patients too. Slowing cancer's progression until we can find a cure, so to speak.
 

CapitalCitySaint

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I had another scan yesterday. There is a nodule (about the size of a pencil eraser) of some sort which has been on the scans for a while, but in yesterday's scan, it was slightly larger than it had been before. Given my recent battle with the gall bladder and a recurrence of skin cancer, it could be larger because of a number of things but we're going to have it biopsied just to make sure. I am sure it is nothing to worry about, and we'll handle it no matter what the results are. The biopsy is scheduled about a week and a half from now and we should know the results a few days after that.

Please send out positive vibes and prayers.

I had a rather odd (or maybe not) thought this morning based on all of those MBC (metastatic breast cancer) commercials that we see all of the time. It seems that in some cases we're "living with cancer" by "managing" it such that it doesn't become life-threatening as kind of a middle step between having cancer and curing cancer. The latest immunotherapy drugs (Opdivo, Keytruda) seem to be in that class of drugs for some patients too. Slowing cancer's progression until we can find a cure, so to speak.
Sending all the positive vibes your way!
 

HoustonSaint68

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Good thoughts and prayers coming your way.
 

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